Join us on our mission to find Jodi a living donor!
You’re here because you’ve heard about the wonderful human being that is Jodi. Whether you’re interested in simply helping spread awareness about her situation, or you’re committed to being a living donor, there are a number of ways that you can get involved in helping Jodi on her journey.
This is Jodi’s Story.
Meet Jodi MacMinn.
If you’ve attended a show at Baltimore’s legendary 8X10 Club in the last decade, chances are good you have encountered our friend Jodi. From working in the box office and behind the bar, to running the shows when the owners were out of town, to working with national acts like Cris Jacobs, Turkuaz, and Pigeons Playing Ping Pong, Jodi has been a true “Jill of All Trades” at the club, and a fixture in the Baltimore music community. Working behind the scenes at festivals like The Ramble Festival, Charm City Bluegrass, Believe in Music, and the MoonRise Festival, artists and crew alike are always happy and grateful to see Jodi on site. Her energy and love for music are infectious and inspiring to us all.
Now, she needs our help (even if she won’t ask for it).
Jodi suffers from Autosomal Dominant Polycystic Kidney Disease (ADPKD), a genetic disorder characterized by the growth of numerous cysts in the kidneys. There is no cure for this disease, and while medication is available, Jodi’s condition is too far along for any meds to help. This extremely painful condition makes even the simplest tasks difficult, and Jodi’s ability to work is severely limited.
Jodi is the last living female from her mother’s side of the family; Her Mom, Aunt, Grandmother, and Great-Aunt have all passed away from this terrible, hereditary disease.
Now Jodi needs a kidney. We are determined to help her find one.
What is Polycystic Kidney Disease (PKD)?
Polycystic kidney disease (PKD) is a genetic disorder that causes many fluid-filled cysts to grow in your kidneys. Unlike the usually harmless simple kidney cysts that can form in the kidneys later in life, PKD cysts can change the shape of your kidneys, including making them much larger.
PKD is a form of chronic kidney disease (CKD) that reduces kidney function and may lead to kidney failure. PKD also can cause other complications, or problems, such as high blood pressure, cysts in the liver, and problems with blood vessels in your brain and heart.
Source: The National Institute of Diabetes & Digestive & Kidney Disease (NIH, NIDDKD)
Ready to help Jodi and people like her find a life-saving transplant?
